The Daughter Chronicles

Tuesday, April 12, 2005

Ch-ch-ch-ch-changes!

Mia's neurologist called us back (finally - so maybe he doesn't suck) and told us that the EEG didn't show any significant increase in seizure activity. That puzzled us, since she's been having more seizures, but whatever. I told him that we were giving her 7 milliliters at lunch and 7 right before she went to bed, and he said that was probably why she was having seizures - the medication from the previous night was gone by the time we gave it to her at lunch, and when we put her down for a nap, it hadn't had a chance to work yet. So he suggested giving her 4 ml at breakfast, 4 at lunch, and 6 at night. We've been doing that for three days and ... nothing. She still has seizures when we put her down for a nap. She's even had a few seizures at night, and the past two days she's woken up at about 4 in the morning and refuses to go back to sleep. Her neurologist is on vacation this week, but if it doesn't change, we'll have to talk to him about doing something different. Seizures suck, not unlike people.

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