The Daughter Chronicles

Monday, December 24, 2012

To EEG or not to EEG!

On Friday the 14th Mia went to Phoenix Children's Hospital to get an EEG, or electroencephalogram, which measures brain activity. This was because of all the seizures she was having back in October, which caused up some concern. Her neurologist said it wouldn't be a bad idea to get her an EEG, because it had been some time since they have done one (2007, I think). So we loaded up the family and went! I needed to go because I need to lift her. Krys needed to go because she has the best chance to get Mia to sleep during the EEG, as sleep is the best time to measure the brain activity. Norah had to go because the appointment was at 2 in the afternoon, and we wouldn't be done by the time she got down with school. So away we went!

The EEG was not terribly successful, unfortunately. We got Mia hooked up to the electrodes and such, and then Norah and I left the room so Krys and Mia could snuggle and Mia could fall asleep. The lights were off, Mia was tired (they recommend keeping the kids up late the night before, which we didn't do, but Mia is often tired at 2 in the afternoon), and all seemed well. The test lasted 43 minutes ... and Mia didn't fall asleep. Krys was surprised - her eyes were closed, her breathing was even, but the technician said her brain never went to "sleep," and then Mia opened her eyes and asked to watch TV, which means she wasn't going to go to sleep anytime soon. So we were done.

The technician told us they would look at the test, and last week we got a phone call from the nurse of the neurologist. The neurologist is on vacation, but an epileptologist (a doctor who specializes in seizures) looked at the scan and recommended that we increase her medication slightly. As this dude has never met Mia, I'm still going to call her neurologist back and see what he says, and I was thinking that taking her to an epileptologist might be a good idea anyway, so we'll see where we go from there. Her seizures are better than they were in October, so it's not as pressing a problem as it was then, but we'd still like to see if we can figure them out a bit more. It's frustrating that they can never get a good reading on her. A day or two in the hospital might help that. I'm not sure if they'll recommend that, but it's certainly something to consider.

So, another inconclusive test. That's not too surprising with Mia. It's always fun!


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